CDC classic case

It's official - Lyme Panel came back positive - Lyme Disease it is. The good news is it's a CDC classic case - meaning all the "markers" were in the right place. This is good because a lot of the times Lyme is only a clinical diagnoisis because the tests dont always "work". With having this positive test, it will make it easier for us if our insurance tries to fight us. The doctor threw out some numbers about which markers were where but I was very lost - so he said he'd go over them with us in person the next time we saw him - works for me. He said based on a scale of 1 -4 I was a 3 as far as how strong the lyme is in my body. We kinda knew it was a severe case with the CD57 but this just echoed it for us. It's good to finally put a name to what I've been feeling for so many years.
That being said, this has been a pretty rough week if Im being honest. On Monday the dizziness was so bad I felt like I was spinning just sitting down. By Tuesday it felt like I had someone sitting on my chest. By Wednesday I felt like I was breathing in ice every time I took a breathe and just walking and holding Alex at the same time became almost impossible. Lucky for me the doctor called on Wednesday with the test result and also to tell me to back off the meds. He said I was doing too much too fast and my body was reacting. So I took a two day break from the meds and will go back on them very slowly.
Its also been hard because I feel like the Lyme is winning a little bit each day. Every time I have to turn down a play date or school event or put the kids down 30 min early or having to stop taking care of my family I feel as if I've given in to this disease a little bit more. I do not like having to have help - it's nice to have but I hate feeling like I cant do it myself. I do not like feeling like I am whining. So it's easier to put on the smile and say Im fine - even though with one look you can tell Im not.
Thank you to my family (Shane, Mom & Dad and Mom & Dad in law) for being the wonderful people you are and helping make this week run as smooth as it did! Thank you to all the friends and family who have sent email and texts checking on us and offering help, love and prayers.
I know this is going to get better. I know this is a fight we will win.

Decoding with a smile

It's seems like forever since we sent the Lyme kit off for testing. Now do I really think it will come back negative? No - that's why I'm following doctors orders and taking my meds as if I do have it and since the other "Lyme maker" test CD 57 came back so low. But it would be nice to have that closure - Lyme panel check, CD57 check check - part of my list making issues I guess. Thing is, nothing seems to be getting checked off the lists these days. The meds have brought back the "symptoms" so my days look nothing like they should. I mean from the outside I look healthy. And I can hide pretty well behind a smile. But I just wish sometimes you could look at me and SEE what the Lyme is doing to me and my body. Wonder if that makes sense to anyone but me?
It's doesnt last all day long - it comes and goes - with more force at times than others. And to use normal words like dizzy, good/bad, tired etc it just doesnt convey how I'm feeling. To help decode, since the "symptoms" have returned I have felt:
"dizzy" - like Im on the ride at carnivals where you stand against the wall and it spins really fast and then the floor drops down but it's spinning so fast that you dont move
"drunk" - like Ive been out with the girls (in my college years) having way too much fun and then go home to try to get a few hours of sleep before class and the room will just not stop spinning and it even hurts to move my eyes
"tired" - like Ive pulled 3 all nighters and still have more things to get done or like the 1 week of motherhood
"weak" - like when I try to move my legs someone has filled the room with thigh deep jello that I have to walk through
"ill" - like when I was expecting Alex and carrying around a box of Triscuits as all times - this hits during meal time only which can be good and bad
"anxiety" - like i have a million and ten things to do but cant figure out which one to do first - this usually hits though when my to do list is done - restless i guess
"forgetful" - Shane says I'm losing my short term memory - to which I said what did you just say lol just more reason to buy cute post it notes, note books and pens :)

AGAIN - this blog is to help others understand not for sadness, fear or pity. So for those of you who see me and ask how are you feeling and I say just a little tired or dizzy you will understand. I will NOT let this "bug" beat me. I am under the mindset that if I give an inch it will take a mile so I'm pushing back harder than I might should be right now - but I'm pushing. So if you want to help on the days that it looks like I'm battling pretty hard - give me a little push :) and then a hug.

I got the fever too

Hey there - yes I too got the I need to separate my blog fever from Kristi and Kristin. I have had the Doing it the Wright Way blog all year now and until recently I had been updating it with cute family stories and pics of our lives and then I started getting sick. Once that happened I feel like my blog is a sad spot so here's my solution - meaning HERE - Under Construction - my new blog. You can read about my live dealing with Lyme, living and the process that is my life. So if you want update that are about me look here not just health physically but also emotional and spiritual as well - all the fun family stuff will be left on Doing it the Wright Way. Hope you enjoy one or both :) Until next update.